A few minutes after the live interview on Mornings@ANC aired someone called our house wanting to get in touch with us regarding Pompe. It was Valerie Jones. I wasn’t home but my mom was and they spoke about it for a long time.
My mom got her email address but apparently she wrote it down incorrectly. Thus her thank you email to Valerie bounced back. Now we don’t have a way of contacting Valerie and I would really like to get in touch with her. She’s a physical therapist and is working with other patients suffering from Pompe.
Valerie, if by any chance you’re reading this or anyone who knows you is reading this, please do leave me a message her as how I can contact you. Alternatively you can give us a call again and this time I’ll make sure to get your contact details right. I’d really love to get in touch with you.