TV Interview

A reporter from one of the more popular T.V. stations came by last Thursday to interview me. She wanted to do a story on Pompe. Although it wasn’t really assigned to her she said she was at liberty to submit stories to her boss and maybe it could be aired.

As long as it’s for Pompe I usually do the interviews. It’s to help build awareness here in the Philippines where Pompe is really unknown, at best a footnote in medical books. A lot of people have not heard of it so when opportunities like this come, I take it. In a small way, it’s my contribution to the Pompe community.

The interview went well. It was shorter than some of the ones I’ve done in the past. It hasn’t aired yet and I haven’t seen the final product. I hope it comes out well.

Funny thing though… One of the last few questions that the reporter asked me was something like.. “Do you ever think you’ll consider getting married? Having a family?” In my mind, I wanted to reply “If you say yes, then yeah I’ll probably consider getting married”. Hahaha. Let’s just say that the reporter was really cute. Of course I didn’t say that to her. Not with the cameras rolling. Plus I didn’t know if she’d take that well. She might have slugged me and it would have been caught on cam.

I just answered as truthfully as I could, saying that I really don’t know if I will. Only God knows the answer to that. If it were up to me, I’d like to get married and have a family. There’s nothing more I want than that. But I guess I have to consider things seriously and to add to that I have to find someone who can understand what I’m going through.
I’m not closing my doors to the possibilty. I’ve always believed that there’s always hope. We’ll never know what will happen in the future.

I’m preparing myself though for the reality that I may never get married or have a family. I just have to accept that if it’s God’s will.

I hope the interview comes out well and that the reporter does a good job with it. Pompe awareness is really important for me. I hope it gets the message across.

4 Replies to “TV Interview”


  2. Hi Dickoy! Thanks for the compliment, i’ll take really cute anytime haha. =) I just wanted to thank you for taking the time out to do the interview. It will definitely be aired on TV Patrol World and News Central on Studio 23 soon. I just want to tell you that while the report discussed on the nature of Pompe, it’s also really about you. I mean I can only do so much with a 1 minute 49 second report (our maximum is 1:30 but the producer gave me a go-signal) and it’s really more of an inspiring story about somebody who’s “just a guy trying to make the most of what is given to him.” I hope you’ll like how the report turns out, if not, you know where I work and we have common friends who know where I live. =)

  3. I was able to read this interview. Its there that I got your site. It took me the whole afternoon to view/read your site. I really admire your courage. You are truly an inspiration. I believe that if God brings you to this, He will surely brings you through this.

  4. I was able to watch the interview a while ago over at ANC, and that brought me to your blog.
    Cliché as it is, I wish a better health for you. Need not I saw I was affected by the/your story. Keep fighting bro!

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