I’m on a break from regular infusions. Myozyme didn’t come on time and I’ve had to skip an infusion, maybe two or more. Still uncertain at this time.
So far it’s been ok. I’ve been feeling a bit sluggish but I’m not sure if it’s because of skipping the infusion or it’s due to the fact that I’ve been feeling bad. The other day I thought I was going to get sick. I felt a cold coming. I drank a lot of juice and slept early. Seems to have worked but I’m still feeling sluggish. I still have a headache.
It’s been four days since I was supposed to have my infusion. I’ve asked my friend who also takes Myozyme. She said that the longest she’s gone without it was 4 weeks and things seemed to be ok. I’m not expecting any problems other than probably the lack of energy. The only thing I feel sad about is the progress I’ve been making. I’m excited to keep adding to it but it seems like it will take a back seat for the mean time.
What I feel good about though is that I know people are trying their best to get it here as quickly as possible. Sometimes things like this just happen.
Your prayers will be appreciated. God might hear them and decide to speed things up.