My 31st infusion started a day early that what it was supposed to be. May 1 is Labor Day and as such a non-working holiday. It fell on a Tuesday which coincides with my infusion day.
Since it’s a holiday the regular hospital staff has the day off. Only essential staff and doctors will be on duty. So we decided to move it up a day. Instead of May 1 I would be having my infusion on April 30.
Like most infusions it went pretty well. Except we started a little bit later. The Rehab doctor stopped by prior to us starting and talked to me. We’re starting a new program and hopefully that would really help improve my condition.
The whole infusion went well. Things of note though were, this is the first infusion that my mom wasn’t there, my doctor felt ill while we were having our infusion, we started a little bit later than usual. Apart from those things were pretty much as they usually are on any given infusion day.
I really thank God that so far so good.
Oh, my doctor said that the next ICAP approvals were already a done deal. Hopefully we get the next batch of enzymes before this current supply runs out.