I had my 30th infusion last April 17, 2007. How time flies by so quickly. I can’t believe it’s been 30 infusions already. It would have been sooner hadn’t it been for the slight interruption in our schedules. But even with the delay, time seems to have still flown by so fast.
It’s a milestone indeed. I’m happy to have gone this far without much setbacks. I’m happy and keeping my fingers crossed that despite 30 infusions I have yet to suffer an adverse reaction. I hope it stays that way. It’s just a bit worrisome since some patients have reported allergic reactions even after 30 infusions. I’m still banking on the fact that I’m not the type of person who has many allergies. In fact, I can’t remember a specific substance that I’m allergic to.
The infusion day started out ok. We were early for a change. In fact, we were so ahead of schedule that I didn’t even get to do somethings that I normally do as part of my pre-infusion ritual. The resident tasked to do insert the I.V. line was there at around 9 a.m.
She got the line in one go. That’s definitely a plus. On the flipside though, she forgot to flush it with saline solution. The blood clotted a bit. So my regular doctor had to flush it out later on. But no biggie.
Funny thing was, the resident was looking at me after she finished inserting the line and asked, “so were you able to finish highschool?”. I answered her in a joking manner, “doc, are you trying to insult my intelligence?, I have a degree in Industrial Design”. We laughed at the same time. She was then quick to say that she thought because I was sick I wasn’t able to finish school. She said I looked sick coz I was lying in bed. That’s quite true. I am sick. But I guess I’ve always thought that being sick isn’t an excuse to stop doing things. Besides I was much better when I was younger so it wasn’t really that hard to finish school. If I had to do it now, then that’s another question. I’d still finish it but it will be harder.
We started infusion at around 10 a.m., that’s ahead of our regular schedule. We usually get started at 11 a.m. I was hoping that we’d finish on time. However even prior to starting infusion I was really feeling like I was going to have a cold. I told my doctor this and she would have postponed the infusion if it were not for the fact that the Myozyme was mixed already. We couldn’t waste it. I told her also that I wouldn’t allow a delay. I would deny that I was sick if it came to that.
The infusion finished early. By 1:30 p.m we were done. I thought I was going to finally be able to go home early. Nope. Life had other plans. My cold got worse and I developed a cough. I couldn’t expel it properly so I got stuck in the hospital room for the rest of the afternoon. Till such a time that I felt well enough to go home.
I got worse the next day. Developed a slight fever caused by the cold. It wasn’t that bad though, just took some cold medicine, drank a lot of liquids and slept the whole day. By evening I was starting to feel better. The fever was almost gone.