I wrote a blog post/article last July 14 titled “ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease”. I’ve been thinking about writing this for a long time. The main reason behind it was that I’ve learned a lot of lessons growing up battling a life threatening disease. Lessons that I know are applicable not just to someone going through an illness but also with everyday life.
I initially just wanted to post it on my blog. After receiving favorable feedback from friends and family I realized that I wanted to share it with more people.