Looking Forward

It’s been several days since I got out of the hospital for my first infusion. I’ve had time to really think about what has happened. I really didn’t want to think about it till the infusion actually pushed through. Now that it has, I’ve reflected on the implications that it will have on my life.

I really don’t know to what extent Myozyme will have an effect on me. All I can do is hope for the best and give it my all and we’ll see how it turns out.

I fully understand that Myozyme won’t be the answer all by itself. I need to put a lot of work along with it. Work such as physical therapy, proper diet, adequate rest, etc.. All of these together will hopefully give me the best result that is possible. Of course above all that is the faith that God is with me and that if he wills it, I will get better.

Now therein lies the problem. All of those I mentioned above will require a shift in how I live me life. Prior to this I basically just worked and health really took a back seat. I needed to work because that’s the way it is here where I live. Life is hard and everyone needs to work to get by. While my family supports me, I can’t just rely on them. I need to do my part.

I’m starting to think of ways on how I can devote my time more to getting better. I’m thinking of trying to devote the coming year 2006, to putting more emphasis on health rather than work. This means I might have to take a break from work.

It’s good that I partly own the business I have together with my partners but then again it’s not a big business and I’m not sure if I can afford to give up my job. Since getting better has its expenses.

I don’t want to be a “burden” to my family and have them shoulder everything. They’ve really sacrificed enough.

So….. what to do, what to do?!? I’m still in limbo. I need to find a solution to this. Any ideas?!? If you do, please let me know. What I’m sure of, is that health has to come first. I really need to put effort into this or Myozyme will just be wasted on me. I don’t want that to happen. Not when a lot of people have put in good effort to bring Myozyme to reality.

I hope 2006 will be a good one. If 2005 is any indication, the next year promises to be great. I’m really looking forward to seeing how it turns out.

Fight Pompe!

2 Replies to “Looking Forward”

  1. while alot of people is still supporting you (especially your family), take care of your health first to make yourself better if not stable so you could go to work in the near future…

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