I’m starting a new feature here on Fight Pompe called “Fighters”. This category of entries is dedicated to Fighters from all over. I’ll be talking to fellow Pompe patients, doctors, nurses, family members and friends. I’ll be talking to them about their experiences with Pompe and life. Hopefully it will give new insight as to how it is to live not just with Pompe but with any disease that alters life.
I’ll be focusing not so much on clinical and the medical aspects of the disease since there are a lot of those already published. I shall instead focus on the emotional, psycological, and human aspect of dealing with a life changing disease.
I hope you take the time to read through the interviews as I know it will be a great read with a lot of interesting stories and lessons.