Fight Pompe Around the World

I’m starting a new thing here at Fight Pompe. Since launching the “Fight Pompe Store”: several months ago, I’ve sold several shirts already. Many thanks to all those who bought shirts. I sincerely appreciate it.

In order to create more awareness and just to see where Fight Pompe shirts have been I’m making a call to those who’ve bought them to send me pics of you or someone wearing the shirts with the general location of where the pic was taken. With your permission I’d like to post them here just so people can see where the Fight Pompe campaign has been.

As a firm believer in leading by example I’ll go first. Below is a picture of me wearing a Fight Pompe T-shirt inside the hospital room during my 9th infusion. Pardon the picture, I forgot the digital camera at home and had to make do with the built-in camera of my mobile phone.

Man! I gotta put on some weight!!!! I look so thin in the picture… But trust me, I look better now than I was a few months ago. Still, I got a long way to go…

So c’mon send me yours. You can email it at juanbkm at gmail dot com.

One Reply to “Fight Pompe Around the World”

  1. Hi Juan (Dikoy?)
    I’m a very good friend of your Tita Stella. I would like to know how to donate a check to your foundation. Tita Stella knows my cell #.
    Take Care,
    Tita Edna

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