I wrote a blog post/article last July 14 titled “ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease”. I’ve been thinking about writing this for a long time. The main reason behind it was that I’ve learned a lot of lessons growing up battling a life threatening disease. Lessons that I know are applicable not just to someone going through an illness but also with everyday life.
I initially just wanted to post it on my blog. After receiving favorable feedback from friends and family I realized that I wanted to share it with more people.
This November I’ll be 35 years old. That would be 5 years more than what I initially thought I’d live to. When I was 10 I started showing symptoms of what would be Pompe Disease. Of course at that time we didn’t know what it was called. It would take several doctors and 6 years to eventually find out what I was sick of.
I’m not here to talk about Pompe Disease specifically. If you want to know more about it you can head on here to read about it. Please finish this first though.
In my 35 years of living, 25 of which were spent battling a dreaded disease I learned a lot of things. Lessons that I know have made me a much better person. Lessons that I know will help other people as well. That is the main purpose why I wrote this article.
Well don’t take this literally. I’m using “Eat Steak Everyday” as an analogy to a common but important lesson that I was reminded of last week.
My family and I had gone out to Elbert’s Steakroom one of the best steak places in Manila. I’ve wanted to take my parents out to a nice dinner. My dad’s birthday was coming up, I had extra money saved up and it also happens I was given the night off from work. With everything falling into place we went out for a special dinner.
To make the long story short we had one of the best steaks I’ve tried. It was a great dinner with dad, mom and my brother. My sister-in-law couldn’t make it because she was on bed rest. That would have made it better.
There’s one thing I never joke about. I never joke about wanting any other parents other than the ones I have. My Dad and Mom are two of the best people I know. I believe that God puts people in your life for a reason. He knew that without my parents I can’t survive the challenges I’m going through.
I wrote about my mom last Mother’s Day so it’s Dad’s turn today.
It’s hard to put down into words how much I love and appreciate my dad. I don’t think I’m that good of a writer to do him justice. Since it’s Father’s Day though I thought I’d try at least.
No! This is not about Apple’s legendary founder. I’m writing about the only Steve I love more than Steve Jobs. Much more.
One of the reasons I made it this far in life was due to my brother Steve. I’m the eldest of what is technically four children. Two of my brother’s passed away. One died from a miscarriage and the other one died when he was two days old.
Steve is my only living brother. He was born four years younger than me. I’m supposed to be the elder brother but growing up it didn’t feel like it. Sure when we were kids I was the boss of him but that didn’t last long.
An old Datejust that belonged to one of my favorite people in the world.
One of my hobbies and passion right now are watches. My reason for liking watches is not about brand or the adornment it brings when you wear one. It’s about the symbol it represents.
One of the most important things in life is time. It’s one of those finite things that no amount of money can replace. Once time has passed it’s gone. There’s no bringing it back.
Dino's birthday. From top, left clockwise (Ivee, Jason, Dino and myself)
For those who wonder how I’m able to continue living my life despite having Pompe Disease, well I get by with a little help from my friends.
Apart from my family, I’ve been tremendously blessed to have good friends. I really don’t know how I would have survived all these years without my friends.
“When you look into your mother’s eyes, you know that is the purest love you can find on this earth.”
― Mitch Albom, For One More Day
The priest in today’s mass asked this question during his homily, “can you think of a person in your life that would gladly give up their lives for you?”. Instantly I knew the answer to that. My mom.
A mother’s love knows no bounds. She would gladly give up her life for her child. A mother is one person who will stick by you through thick and thin. Love you when you’re at your most unlovable state. To her you’re the prettiest or handsomest person in this world, equal only to your siblings.
“The man who forms the habit of beginning without finishing has simply formed the habit of failure”
The above quote is from the book “Streams in the Desert” by L.B. Cowman. It’s one of the books I read on daily basis as part of the habit of prayer I’ve been trying to form thess past few weeks.
I’ve been guilty of starting a lot of things that I have not finished or followed through. I’m sad about it because some of them could have turned into something great.
I want to change that. I’ve realized that one of the most important things a person should develop is perseverance. We should always push forward and not give up on things that are worthwhile.
By some miracle I made it to the 11 o’clock mass. I work nights and so my body clock is really screwed up. You will rarely see me outside before noon. So today was definitely an exception.
I wanted to go to the morning mass because the place I hear mass at, Club Filipino is just across the street. It’s very convenient.
I was happy to see that the priest, Father Christian was the one saying mass. I like Father Christian. He’s a young priest who has a good sense of humor. He also knows how to give adequate length yet insightful sermons. Unlike some priests who go on and on yet end up not making sense at all.