What I thought would be a nice evening turned out to be well.. not quite. At least not in the beginning.
The great thing about getting Myozyme is that now it’s allowed me to regain some of the things I’ve not been able to do. I now have more energy to go out again and enjoy life.
We went out to celebrate my brother’s birtday. We were going to eat at a restaurant called Buma at Tiendesitas in Ortigas Center. My mom and dad have ate there before and said that the food was good. My brother wanted to try it out.
I’ve been using a “Bi-Pap breathing machine”:http://www.cpap.com/productpage/respironics-synchrony-st-bipap.html 24/7 for several years now. I have it attached to my wheelchair. I also run it with an external battery although it can also run via electrical current.
When we got to Buma, we were seated at our table. We then asked if we could plug in to the electrical outlet to conserve my batteries. The waiter said yes. He then informed us that they’ll be charging us for the use of the electric outlet. My parents said sure. We were then told that it would cost 500 pesos per hour (a little less than $10). What the hell…
My dad went to talk to the manager to clear things up. It could have been just a mix up. No dice. The manager said that it was policy. My dad tried to negotiate a fair rate. Say 50 pesos an hour ($1). No luck there.
My dad went back to our table mad. He told us that we were leaving. He had our orders cancelled and we went to the restaurant next door.
Wow.. How uncompassionate can some people get.. I mean I’d understand if we were plugging in a laptop, celphone or whatnot. But a breathing machine?!?! Have a little heart. It’s not as if we’re going to make money of the electricity. Plus the Bi-Pap doesn’t draw that much power. Certainly not that much to warrant that kind of fee.
In the end we just ate at another place, Mario’s Kitchen. They were also going to charge us for electricity but at least at a reasonable 50 pesos ($1) an hour. After we finished dinner and were about to pay for the food. The waitress told my dad that they decided not to charge electricity anymore. My dad was happy. At least some people still had compassion in them. My dad left a tip for the waitress.
Rest assured my family will not be eating at Buma again.. Not until they apologize and promise not to treat customers like that ever again..