My name is Juan Magdaraog. I suffer from the juvenille/adult onset of Pompe Disease. Pompe disease first manifested itself when I was around 10 years old. At that time no one in the Philippines knew what it was. In fact I was misdiagnosed till I was about 15 years old. The first diagnosis was Muscular Dystrophy. It was only when I had a chance to go and see a Muscular Dystrophy specialist in San Francisco that a proper diagnosis was made. The verdict, it was Pompe Disease.
I’ve been dealing with Pompe Disease for quite a long time now. 18 years as of this writing. It’s been a tough life. Filled with a lot of challenges and difficulty. Despite that I’ve managed to do a lot of things.
With the love and support of my family, I’ve managed to finish school. In 1999 I graduated with a degree in Industrial Design from DLSU-College of Saint Benilde. This is something I’m extremely proud of.
I’ve worked most of my adult life. I’m currently the Creative Director for a small start-up called Sparkplug Studios. I started this company middle of last year together with my brother and some other friends. Prior to that I spent some time working at other companies, Burnlounge and one of iAyala’s start-ups.
Work has always been a big part of my life. Not so much because it gives me monetary rewards but moreso for the sense of dignity it brings. I can honestly look at myself in the mirror and say I’m worth something. I contribute to this world we live.
Although, I know that this year or at least for the months to come, work will have to take a back seat. I need to focus more on health. Now that I’ve been given a chance to Fight Pompe better I need to take full advantage of it. With your help, I know I can fight this disease.
Apart from my full time day job, I also do some writing on the side. I write for a local mobile technology magazine called MPH. I’m starting to like writing and hopefully will get to do it more. You have a writing gig for me? Sure thing! Just drop me a note.
I love two things in this world with a passion. Apple Computers and Ferrari. Although these days the scales are tipping more towards the fruit. I love their products!
I love my family. I thank God for them each and every day. They are the reason I am here. The reason I’m able to do what I have done thus far. My life is dedicated to them.
I’m an easy going, often times friendly and approachable guy. I’m actually very nice once you get to know me. I get a long with people easily. Chances are we’ll get along just fine.
To know more about me then what’s here, I guess you’ll just have to read the entries here in the web site.
You have a great day now, Ya’ hear!
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