I wrote a blog post/article last July 14 titled “ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease”. I’ve been thinking about writing this for a long time. The main reason behind it was that I’ve learned a lot of lessons growing up battling a life threatening disease. Lessons that I know are applicable not just to someone going through an illness but also with everyday life.
I initially just wanted to post it on my blog. After receiving favorable feedback from friends and family I realized that I wanted to share it with more people.
Continue reading “Look Ma’ I Made It To Rappler!”
A friend of mine is set to open up another restaurant by mid August. Umami Hambaagu House promises to server the best “melt in your mouth” Japanese Burger Steaks in town. If their previous restaurants are any indication this promises to be something worth trying.
For now the location is hush-hush. If you want to find out where it is, head on to their web site and sign up for their news letter. They will inform you of the location once it’s ready for the public.
Quoting from their web site:
Umami is a small, personal and cozy restaurant serving creative and authentic Japanese burger steaks in a secret location somewhere within Metro Manila. The only way to know our location is by joining our mailing list or following us on Facebook. If you desperately want to know, you can ask us but we’ll have to murder you in cold blood right after.
I for one can’t wait to try it out!
This November I’ll be 35 years old. That would be 5 years more than what I initially thought I’d live to. When I was 10 I started showing symptoms of what would be Pompe Disease. Of course at that time we didn’t know what it was called. It would take several doctors and 6 years to eventually find out what I was sick of.
I’m not here to talk about Pompe Disease specifically. If you want to know more about it you can head on here to read about it. Please finish this first though.
In my 35 years of living, 25 of which were spent battling a dreaded disease I learned a lot of things. Lessons that I know have made me a much better person. Lessons that I know will help other people as well. That is the main purpose why I wrote this article.
Continue reading “ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease”
I’ve been a big fan of Terence Wrong’s medical documentaries ever since I saw the first episode of Boston Med that aired 2010. After seeing that show I googled for more information and saw that there were prior documentaries. So I ended up watching Hopkins 24/7 and Hopkins.
I was so glad to find out that a new documentary was set to air last July 10.
I caught the first episode just today and I must say, it looks to be another good series. I love that it’s set in New York. That city will always have a special place in my heart. I’ve been there several times and I spent some of my happiest days creating good memories there.
Continue reading “NY Med: Real Life Medical Drama”
Well don’t take this literally. I’m using “Eat Steak Everyday” as an analogy to a common but important lesson that I was reminded of last week.
My family and I had gone out to Elbert’s Steakroom one of the best steak places in Manila. I’ve wanted to take my parents out to a nice dinner. My dad’s birthday was coming up, I had extra money saved up and it also happens I was given the night off from work. With everything falling into place we went out for a special dinner.
To make the long story short we had one of the best steaks I’ve tried. It was a great dinner with dad, mom and my brother. My sister-in-law couldn’t make it because she was on bed rest. That would have made it better.
Continue reading “Eat Steak Everyday”