I suffered my first real setback since starting my Myozyme infusions. Last Sunday I was brought to the E.R. at around 6:30 p.m. I was having trouble coughing that afternoon. For some reason I couldn’t expel the phlegm in my lungs. I was able to do this the past few weeks with relative ease as compared to 6 months ago. I don’t know why it was harder that time. It came to a point where I was having trouble breathing already. I asked to be brought to the E.R. before it got worse. I wanted them to suction the phlegm out.
We arrived at the E.R. and got looked at by the attending doctors and nurses. I don’t know if it’s just because they rarely see cases like mine or maybe my situation wasn’t really that serious but they sure took awhile to start suction. They asked a lot of stuff first. All I really wanted was for them to suction it out since I couldn’t breathe. They eventually did and I felt better. I want to thank the nurse who suctioned it. She did a good job and was very warm and friendly.
The doctor asked for a blood test to rule out an infection. At first I didn’t want to because it was a normal occurance for me to get a bit of phlegm in the mornings. Usually after I cough it out, it’s over. To be on the safe side, they wanted to do it. Turns out that my segmenters were high, suggesting a bacterial infection. So they prescribed some antibiotics. I was sent home at close to 10 p.m. Yeah I stayed there for that long.
The next morning, my mom called my attending physician. The one who administers Myozyme to give her a briefing on what happened. She said that the protocols for the infusion stated that we had to control the infection first before continuing with it. So that was it. Infusion postponed. Simple as that. I didn’t want to argue since they’re only looking after what’s best for me.
I started my antibiotics Monday. That will last for 5 days. If after that period I feel better and my tests are ok, we continue with the infusions.
Please pray for me that I’ll be able to continue my infusions ASAP. I hate missing infusions. I hate being sick even more. Especially if it’s pulmonary related.