15th Infusion

The 4th of July marked my 15th infusion of Myozyme. As each infusion passes I’m amazed at how far I’ve gone. It seems like it was just yesterday that we started the 1st.

I don’t really know what to write anymore being that each infusion runs pretty much unventful. Don’t get me wrong, I like it that way. I’m grateful that I have nothing “eventful” to write about.

The 15th started out pretty much the same. Checked in the hospital the night before. Oh, for the first time we repeated a room. For the past fourteen visits we’ve managed to get assigned a different room. The 15th marked the first time we repeated a room. Hey, it was bound to happen.

I guess the highlight of the night was the food. We’ve tried a lot of fast foods restaurants already and was getting bored. Thankfully I saw the flyer for Mexicali. We tried that. Mexican food… yuuummm..

The infusion day started out pretty well. Got up at around 7 a.m., we ordered breakfast. I had pancakes and sausages from McDonalds. Infusion days usually are times that I get to eat fastfood. I really don’t like hospital food. I just can’t stand it. I feel bad enough as it is being in the hospital, then it’s compounded by hospital food. Not good…

Dra. Lani came back from her vacation. That’s always a good thing. I like her a lot. No.. not in that way. I like her a lot as a doctor and person. She’s always cheerful and such a nice person to be around with. I look forward to seeing her during infusion days. Don’t get me wrong, that goes for my other doctor too. I love seeing her as well. It’s always a fun time with them around.

We started a bit earlier than usual. Although as always it took a few tries to get the I.V. line in. If you look at my hands now, you’d think I was a druggie. From the countless needle marks on my hand. Let’s see, 15 infusions and on the average it takes about 2 tries to get the I.V. line in, that’s around 30 needle marks. Luckily not all of them have scars. Some have disappeared already.

We finished around 2:30 with the infusion proper. I had lunch and spent the remaining time chatting with the doctors. We also brought cake for Dra. Estrada since she celebrated her birthday the week before. It’s the least we could do for her kindness and excellent care.

We left the hospital around 5:30 and was home before 7 p.m.

A great visit as a whole. No untoward incidents, a nice quite and fun visit.

2 Replies to “15th Infusion”

  1. Dear Dickoy,

    Glad to know that you are surrounded by great people, specially the doctors. I salute all the doctors who chose to stay in the philippines and help our fellow Filipinos. Praise God for your smooth and fun 15th infusion. God bless.

  2. hello juan!
    I’d seen you over ABS CBN and so interested in knowing the cause of this disease.

    anyways… you’ve done a lot with your life and you are blessed thought having such illness.. ill among those people wholl pray for your health..

    God is always with you..

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